Helping you with patient information

Here’s just a selection of the rich resources to support Patient Information. Explore our full range via our website: https://www.bsuh.nhs.uk/library/

NHS OpenAthens password required; register here: http://openathens.nice.org.uk/

Books

 

Stein-Parbury J.  Patient and person: interpersonal skills in nursing. 6^th ed. 2018

Matthews J The carer’s handbook: essential information and support for all those in a caring role. 2^nd ed. 2017

Smith C A Meeting health information needs outside of healthcare: opportunities and challenges 2015

Tristram M. Probably Nothing: A Diary of Not-Your-Average Nine Months. 2014

Leavitt S. Tangles: A Story about Alzheimer’s, My Mother, and Me. 2012

Irwig L Smart health choices: making sense of health advice  2008

Alexander J. Bullies, Bigmouths and So-Called Friends. 2006

Kiley R The patient’s internet handbook 2002

 Journals

Patient Education and Counseling

 Evidence searches carried out on Patient Information

We provide evidence to inform patient care, service improvement, research and clinical teaching. Recent searches we’ve provided include:

Nutrition for paediatric wound healing – parent / patient info leaflet

Patient information: what is a colonoscopy?

Patient information leaflet: craniotomies

Information resources for A&E patients referred to the EPU

Health and wellbeing packs for patients

Multiple long term conditions (MLTCs) and patient information management systems

Patient information for bile salt diarrhoea

Examples of good practice: online medicine information resources

Patient information for pancreatic exocrine insufficiency

 

Web and other resources

EIDO Healthcare (BSUH staff only)

Access to a bank of patient information leaflets produced by EIDO Healthcare. These should be used alongside the Trust’s own patient information leaflets to improve the patient consent process. A Username and Password is now required at each login.

BSUH Patient information leaflets (BSUH staff only)

Accessible to all staff in the Trust.

BMJ Best Practice  (BSUH and Brighton & Hove GP and CCG staff; NHS OpenAthens username and password required)

Download, print and email patient leaflets on a range of conditions, procedures and treatments.  These resources are regularly updated and carry the Information Standard accreditation mark.

Clinical Key (NHS OpenAthens username and password required)

Choose Patient Education from the drop-down menu on the homepage.  Articles, guidelines, images, videos and books.

New Nursing & Allied Health Database

NHS staff can now access EMCARE, a nursing and allied health database with over five million records from 3,700 international journals.

– Access to over 1,800 journals not available on other leading nursing   databases
– Records dating back to 1995
– Up to 250,000 record citations added each year
– Comprehensive scope of international content (more than any other nursing database!): 50% of journals from North America, 40% from Europe; 10% from other regions; 9% of all records reference non-English articles, though most have English-language abstracts
– 70% of records contain online abstracts

Whether you’re involved in nursing practice or research, or you’re a nursing student at any level, Ovid Emcare provides you with the best way to search, discover, and manage the information that matters to you.

You can quickly and easily uncover evidence-based literature and the latest scientific advancements that support patient treatment in a wide variety of healthcare settings and lead to more cost-effective and higher quality care. Download the factsheet for more information.

Access EMCARE with an NHS OpenAthens account at hdas.nice.org.uk

 

OnExamination website back to normal

BMJ advise the OnExamination website should now be working but do contact us if any issues.

New Senior Library Assistant at MVH Library

We’re very pleased to introduce you to Don Lickley, who joined our LKS team in March. You can learn more about Don below:

“I am the new Senior Library Assistant based at Mill View Hospital. I am responsible for helping with the day-to-day running of the Library and helping users on the enquiry desk.

“This is my first time working for the NHS. I’m a qualified librarian and have worked in a range of library services over the years, including King’s College London, the College of Law and HM Treasury, as well as Sue Hill Recruitment, a specialist recruitment agency to the library and information sector.

 

“I’m fairly new to Brighton, so I’m looking forward to getting to know the team and the customers here, while continuing to explore the city”.

You can contact Don on don.lickley@nhs.net

 

Sourcing and creating Patient Information leaflets

EIDO Healthcare Patient Information leaflets are well-designed hand-outs that are written by experts for your patients, now available in different languages.  The leaflets are available to Brighton and Sussex University Hospitals Trust staff only and are accessed via BSUH intranet.

But how do I create patient information?

Patient leaflets are difficult to write, take ages to create and are lost or forgotten as soon as they’ve been printed out and dumped on someone’s desk, right?

Wrong!

Brighton & Sussex University Hospitals NHS Trust is lucky enough to have a Patient Information Librarian, Cecilia Bethencourt-Dunning, who is here exclusively to make sure that patients get the right information at the right time, and in the right way. Your pre-conceived ideas about how hard it is create patient leaflets can be consigned to the (recycling) bin.

If you realise there is a gap in the information that you provide to patients, a patient leaflet could be the answer. But once you have identified that need, where do you start?

To get you going, Cecilia can carry out an initial evidence search to find appropriate resources to form the basis of the leaflet.  Cecilia can also create a first draft with you which can be edited, amended, and built on until the content meets the needs of the patients. The first draft is often the hardest, but once something is down on paper it is much easier to clarify and refine what you wish to say.

All leaflets should adhere to some standards, for example:

• They must be in question/ answer format
• They must include a publication and review date
• They must include contact details

The BUSH Intranet has a sample leaflet with hints and tips.

How do I get my draft leaflet approved?

Once you have a draft you are happy with, it should be emailed to CPIG (Carer and Patient Information Group) at bsuhcpig@nhs.net. Leaflets are then read through and checked for readability and clarity, making sure there is no jargon and the information is logically ordered, structured and easy to understand. Writing for patients is a challenge for many staff in the Trust as it can be very difficult to imagine yourself as a patient. The CPIG team has now been expanded to include several lay-people and drafts will also go through them for approval.

Amendments are sent back until there is a final draft that everyone is happy with: sometimes, no amendments are really needed and your leaflet is good to go.

All leaflets are then given the CPIG approval logo, with a publication and a two-year expiry date.

How do I ensure my final approved leaflet is being used?

Once completed, the leaflet should be sent to the Clinical Media Centre, who will format it and add the Trust logo. It is then uploaded onto the BSUH website for everyone to use and share. This is an essential part of the process as patient information must be available for all to access, whether this is patients (current or past), their families and carers, or your colleagues in another part of the Trust.

Is it necessary to go through this process for every leaflet?

Yes, it is. We want all information for patients in the Trust to show a mark of assurance and quality, which is what the CPIG logo is. We also need to ensure that the Trust’s logo is used appropriately:  if you are putting it on your patient information, you are giving the message that the Trust endorses what is written in that leaflet, so it needs to be of a high standard. The process doesn’t take a long time, and Cecilia will try to respond as quickly as possible to requests for help. Below is what a Macmillan Neuro-oncology Clinical Nurse Specialist has to say about Cecilia’s support:

“Talk to the Library and knowledge Service. The person to speak to is Cecilia Bethencourt-Dunning. She is really keen to help and provides a brilliant service.

“With your ideas as a start she will do the research for you, write a draft, offer suggestions. It doesn`t matter how basic you think your ideas are she is there to help you produce a professional piece of work. In fact, it is so easy you wonder why you haven’t actually done this before. The “Pink Drink” leaflet was produced in a matter of weeks having gone through several drafts. It is now available throughout the Trust.”

You can contact Cecilia at any time on Cecilia.bethencourt-dunning@bsuh.nhs.uk    Twitter: @BSUH_libraryCBD